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KD Voices: KDA Launches New Patient Engagement Initiative

KD Voices

The Kennedy’s Disease Association (KDA) is launching KD Voices, a new initiative that will give people affected by Kennedy’s Disease an opportunity to share their experiences, perspectives, and priorities directly with pharmaceutical and biotechnology companies developing potential treatments.

KD Voices will bring together a global group of volunteers, including people living with KD and care partners to help ensure the community’s perspectives are considered in research, therapy development, and clinical trial planning.

Volunteers may have opportunities to learn about emerging research, engage with companies developing potential treatments, and provide input on the priorities and needs of the KD community.

KD Voices Begins in the U.S. and Canada, With the Global Kennedy’s Disease Community to Follow

KDA is now seeking volunteers to participate in KD Voices.

If you are living with KD or are a care partner, we invite you to learn more and consider getting involved.

➡️ Learn more About KD Voices

➡️Complete the KD Voices Volunteer Interest Questionnaire

Together, we can help shape the future of KD research and therapy development.

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